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OnePath Hunter (v. 1.0)
Shire HGT опубликовал приложение 2012-09-25
(обновлено 2012-09-25)
OnePath Hunter application, provided by Shire Human Genetic Therapies, Inc., is another tool to help facilitate comprehensive and individualized support for patients and families managing Hunter syndrome.
OnePath Hunter application Educates, Enables, Empowers and Connects:
- OnePath News: Educates the patient about news articles related to Hunter syndrome
- OnePath Cal: Enables the patients to manage their appointments in a calendar that is specifically customized for Hunter patients
- Tracker: Empowers the patients by providing ways to track their height, weight and Urinary GAGs and keep Hunter related records.
- OnePath Support: Connects the patients with OnePath case managers. Case managers have access to many important resources. Please visit http://www.onepath.com/get-started/case-managers/ to know more about ways in which case managers can help.
About Hunter Syndrome
Hunter syndrome, or mucopolysaccharidosis II (MPS II), is a serious genetic disorder that primarily affects males. It is caused by the body's inability to break down certain elements in the body called mucopolysaccharides (mew-ko-pol-ee-sak-ah- rides), also known as glycosaminoglycans (gli-ko-sah-mee-no-gli-cans) or GAG. The buildup of GAG is due to a deficiency or absence of the enzyme iduronate-2-sulfatase (I2S). This buildup interferes with the way certain cells and organs in the body function and leads to a number of serious symptoms.
Managing Hunter Syndrome
In managing Hunter syndrome, there are many ways to help enhance you or your child's wellbeing. One of these is finding the right specialist with experience treating children with special needs. Another is that palliative and symptomatic treatments can help relieve pain and enhance general health. Also, staying informed of medical progress can give you insights into the latest advances in managing Hunter syndrome. Many organizations provide general information and community and governmental support for families living with the disease.
OnePath Services
OnePath is a great resource if you have questions about Hunter syndrome or about navigating through prior authorizations or other insurance related matters. For more information about OnePath, please visit OnePath.com or you may contact OnePath at 1-866-888-0660 and onepath@shire.com. Case managers are available to answer your call from 8:30am-8:00pm ET
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